Whitney want to see a GI at Nemours last month and he felt strongly it was time for a feeding tube. She is not gaining weight despite supplements and meds. So to the hospital we go next week.
We will be at Nemours from Monday Dec 21-24. Hopefully getting out Christmas Eve. She is getting a Nasal tube this month. That will hopefully strengthen her and set her gaining weight so we can put a permanent tube in around February.
I am thinking this is not going to go as well as her doctor expects. I am not really sure we will be leaving with a feeding tube unless they tie it In place, which is a possibility.
The school is worried. Some staff actually asked guidance of they had to take her. Our dear guidance counselor said,"of course we will take her and we will get through this together." They are scared too. It's new to some of them.
Well I am sure I will post as we go along. Too many feelings to keep pent up.
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