I'm having a very frustrating day.
So many months have passed with nothing too new to report. We have avoided doctors like a plague. I just can't even bring myself to call them to tell them we are not coming any more. I have given up trying to find out what is going on, and we are just going to treat symptoms.
Whitney has gained skills, most certainly. She now walks holding one hand, and is using her walker very well. She walks out to the pond easily now using her walker. Her pincer grasp is quite improved - M&Ms helped that situation.
Her language is improving. We actually heard a 4 word sentence the other night, "I'll get my book," after she dropped it on the floor. Bursts of language. She probably has a vocab of over 100 words now.
Self help skills are improving. Whitney does a good job brushing her teeth, and is able to remove shoes and socks with some aggrivation.
She still loves school and barely says goodbye to us each day. We get good reports, but not enough information. It's a little frustrating. Her teacher told me this week we only get one IEP review per year. That totally seems inadequate with such a young child gaining skills so rapidly. I'm going to need to follow up on that.
So now for my frustration. We went to the Conductive Education center last week for an evaluation for Whitney to join a summer walking challenge program. Six intensive weeks of therapy. Well, little WWW was a pain of course....she hates therapy and does everything to avoid it. She knew right away this was a therapist.
So they call me...and they are not sure Whitney will be successful because of her inability to pay attention for 3o minutes at a time, and are not sure she will be able to take their direction.
LORD, it's like being told your kid is too disabled for the disabled class. I just wanted to scream and cry and pound my head on the ground.
Well, they offered to bring her in to take two classes during the week to see if she can do the class, so there is still a chance she will cooperate and get into the program. I really assigned many hopes to the program, based on other testimonies, and this was a bit devistating to me.
