WHEW, what a day yesterday was. Whitney had her EEG. I don't EVER want her to go through that again. I suppose I expected her aweful behavior because she is hypersensitive and hates things on her head, but I didn't realize how bad things would be. This was the worst test yet...worse than the blood tests. It was so aweful that I am DONE with tests. I just don't care THIS much to know what is going on.
We tried starting this in dad's lap, but she was a wiggle worm. We put her on the table, and she said "Scared." We tried to reassure her. They started the test by rubbing small areas of her scalp with a scratchy blue paste so the electrodes would adhere better. Screaming. I had to lay on top of her to hold her down. Then they dipped about 20 electrodes in a paste and stuck them to her scalp. More screaming, more holding. When they tried to wrap her head in bandages to hold everything in place, it got REALLY bad. They wrapped her all up so she looked like a nun. She was MAD.
We transferred her to dad's lap and she looked like the Terminal Man with all these wires coming off the back of her head. Then, the technican said...it would be great if she went to SLEEP. My god. She is losing her mind and they want her to sleep. We did get her calmed down with multiple readings of the Wheels on the Bus book and a bottle. They did a stobe light test. Then, since she would not sleep, they put BANDAGES over her eyes. She was so scared. That didn't last long.
After this was over (30 minutes of actual testing), we took off the bandages and extracted the electrodes from this mass of sticky, long, red hair. They washed her head and hair off, and she felt better.
We came home and www and I held each other for a long time.
I can't do this any more. So we don't have insurance to pay for therapy due to no diagnosis...who cares. I don't think she will need therapy for much longer anyway. Her speech therapy needs are drastically decreasing as she is enunciating and talking more and more (she said "No School!" this morning.), her fine motor skills are improving a lot, and it won't be long before she walks.
It is good we KNOW there is nothing discernable wrong, but we have exhausted the tests. No need to keep grasping.
